Well, the image really says it all, but changes have been happening for over 23 months, right back to the time when I was first admitted to Mona Vale Hospital. And to this day, the 20th February 2020 changes are still being made.
Today a new journey begins. The 12 month journey with the Stelara biological drug for my severe psoriasis has come to an end as it has now stopped working. Whether this is because my body has become immune to it or whether it has just stopped working for me full stop. We don’t know and nor can we even really work it out, all that we do know is that it has stopped working and as a result it must be stopped, which happened a couple of weeks back now.
On Tuesday, whilst I was at the eye doctors getting my Diabetic Eye Sight check done I got a phone call from Alison, who is the nurse and receptionist that I deal with all the time at my Dermatologists office. She told me that Medicare had approved the change of medication under PBS and that she was faxing a copy of the script to my chemist and also sending them the original copy in the mail that day. The reason for the fax was so that they could get the script in and I can start using it straight away.
Yesterday very late afternoon, and too late for me to get down there I got a message through on my Chemist Warehouse app telling me my other medication was ready for pickup and also that the new injection, which is called Iluyma is now in and ready for pick up. So my plan is to be at the chemist at 8am this morning when they open, I will catch an Uber down to collect these items, I will go up to the newsagent and get a packet of smokes and hand in my winning scratchy card and then I will nip into Woolworths and buy some fresh bread for toasties later today, I might also grab a case of Mother or Monster Energy drinks, depending which are on special as I now have none left.
So a new change, chapter or journey (whatever you want to call it) in my life is now about to begin with the new drug. Which I won’t be able to take until this afternoon until Mum is home really to make sure everything is alright since this is a complete new medication with ingredients I have never had before. Even though it should be fine and I shouldn’t have any serious side-effects, it is better to be safe then sorry. So me and mum have a plan, she just has something on this morning, which is fine cause we can do the 30 minutes this afternoon, unless I get inpatient and just take it and risk it (which knowing me is a big possibility lol).
Now fingers crossed that this one will last more then 12 months. I don’t think I am really going to like have to keep changing these ever 12 months. And what is bad right now is the itchiness is back and it is so damn annoying again. I just want this shit to be over and for a long time there it was. Oh well, not everything is going to work. Damn look at all the other medication I am on. One day when I can be bothered I will actually write out an inter list of everything I take on a daily basis.
Anyway, enough from me for now. I will write another post this afternoon after I have the new injection and let you know how I feel and if I get any side effects etc. Hopefully not, but if there is hopefully it will be just like the first couple of doses of Stelara, which was just a slight headache which I fixed with a couple of headache pills and then I was fine. Time will tell later today.